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Diagnosed with a rare genetic cancer syndrome at 10, Lakita Frida survived amputation and a marrow transplant to become a voice of hope for Kenya's youth.
On International Childhood Cancer Day, the story of 19-year-old Lakita Frida stands as a defiant rebuke to despair—a journey through misdiagnosis, amputation, and a rare genetic syndrome that could not crush her spirit.
For most teenagers, the greatest worry is an exam result or a social media feed. For Lakita Frida, it was the realization that her own DNA was conspiring against her.Diagnosed at age 10 with osteosarcoma—an aggressive bone cancer—Lakita’s battle was compounded by Li-Fraumeni syndrome, a rare genetic disorder that predisposes carriers to multiple cancers. Today, standing on crutches with one leg, she does not ask for pity. She demands awareness.
Her journey, detailed on the eve of International Childhood Cancer Day, exposes the fragile state of pediatric oncology in the developing world. It began with a misdiagnosis—a common tragedy in Kenya where specialized care is concentrated in the capital—and evolved into a saga of medical endurance that took her from Nairobi to India.
Lakita’s war against cancer was fought on two fronts: the physical and the psychological. After initial chemotherapy, she underwent limb salvage surgery, replacing her knee with a titanium implant. But the cancer, relentless and adaptive, returned in 2020.
Now in remission since 2022, Lakita has redefined what it means to be "whole." She finds crutches more comfortable than a prosthetic and uses her platform to counsel other young patients. "You are not just a patient," she tells them. "You are a hero."
Her survival is a statistical anomaly but a moral imperative. It highlights the urgent need for genetic screening and accessible cancer care in East Africa. Lakita Frida didn't just survive cancer; she outran a genetic destiny that tried to erase her.
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